The SCD Resource Library houses trusted information and materials developed by medical experts and researchers across the SCD community. All resources are free to access and share.
Written by Tenneil Goulding and Sheena Au-Yeung. This guide offers practical ways to manage pain. It helps you move beyond just coping and start focusing on the things that matter most to you.
This is a guide designed to treat "Food as Medicine" for individuals living with SCD. This material was produced by the Sickle Cell Nutrition Academy, an organisation dedicated to educating and equipping people with SCD.
This educational resource was created by the Sickle Cell Disease Coalition and includes visuals licensed by the American Society of Hematology. It covers the genetics, medical complications, and treatment of Sickle Cell Disease.
Created by the Sheffield Teaching Hospitals NHS Foundation Trust's Red Blood Cell Disorder Service, this guide explores the emotional challenges of living with SCD. It offers practical tools for managing distress, including self-compassion, understanding how the mind and body are connected, and mindfulness techniques you can use every day.
The Sickle Cell Disease Coalition also created this resource. It explains the history and genetics of SCD, including how a genetic change that once helped protect people from malaria later became the cause of the condition in different parts of the world.
This handbook was adapted for Nigerian families by Biobele Brown, Adeyinka G. Falusi, and Paula Kienberger Jaudes, based on original material from the Children's Hospital—Oakland Sickle Cell Centre. It is a practical guide for parents of children and adolescents (aged 6 to 18) with SCD, offering advice on managing medical complications, helping children succeed in school, and supporting them as they move toward independent adult life.
Not every SCD question has a ready-made fact sheet. If you are looking for something you cannot find here, reach out. We will help you find an answer.