WELCOME TO SICKLESAFE CARE FOUNDATION
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Supporting individuals and families living with Sickle cell disease.
Every year, 150,000 Nigerian children are born with Sickle Cell Disease. Most families never get the information they need.
Our mission
Our mission
We support individuals and families living with Sickle Cell Disease through information and community.
Library of Lived Experiences
Library of Lived Experiences
Real stories from people living with sickle cell, their families, and caregivers. Because no one should navigate this journey alone, share your story, and help someone else feel seen.
Nigeria has more children born with Sickle Cell Disease than any other country in the world.
Yet most Nigerians never receive clear, reliable information about what SCD is, how it affects the body, or how to support someone who has it.
life with scd
life with scd
For individuals living with Sickle Cell Disease, life includes recurrent pain crises that disrupt school, work, and daily activities
Many individuals face stigma. False beliefs about curses and ancestral sins remain common, leading to social exclusion and isolation
Depression and anxiety are common, worsened by the stress of frequent hospitalizations and the feeling of being misunderstood
For families, the burden is intergenerational. SCD is hereditary, so its impact stretches across generations
HOW WE HELP
HOW WE HELP
information
information
We gather trusted information from doctors, researchers, and trusted health organizations
community
community
We create spaces, online and in person, where families can share experiences, ask questions, and find people who truly understand.
awareness
awareness
False beliefs about SCD still exist. We work with community leaders, religious groups, and health events to replace misinformation with understanding.
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