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Sicklesafe is a patient-led initiative, founded by a family that has lived with sickle cell across generations.
Mission
Mission
We support individuals and families living with Sickle Cell Disease through information and community.
Vision
Vision
A Nigeria where every family affected by SCD has the information and support they need.
our story
our story
Sicklesafe Care Foundation is a patient-led initiative founded by a family that has lived with sickle cell across generations. Ours is one of many families in Nigeria and the African diaspora living with SCD in a society where it is not well understood and still carries much stigma.
Nigeria has more children born with Sickle Cell Disease than any other country in the world, with an estimated 150,000 every year, yet studies show that most families never receive clear or reliable information about managing the condition. Access to support remains limited for the majority, and stigma continues to affect how families are treated in their communities.
Sicklesafe was founded by Bayo Adaramola, a sickle cell warrior who has lived with SCD his entire life. Alongside his sister, Oyebola Awodeyi, who is also a sickle cell warrior, and his children Olumide and Shekinah, who are carriers of the trait, the family came together to build a place where Nigerian families can access trusted information, connect with others who understand, and find the support they deserve.
Bayo serves as founder, while Oyebola, Olumide, and Shekinah serve as trustees. Together, they are building Sicklesafe around three pillars: information, community, and awareness.
Sicklesafe Care Foundation is a legally incorporated non-governmental organization in Nigeria. We are registered with the Corporate Affairs Commission (CAC). Our registration number is 8470644.
HOW WE HELP
HOW WE HELP
Information
Information
We gather trusted information from doctors, researchers, and trusted health organizations
Community
Community
We create spaces, online and in person, where families can share experiences, ask questions, and find people who truly understand.
Awareness
Awareness
False beliefs about SCD still exist. We work with community leaders, religious groups, and health events to replace misinformation with understanding.
aims and objectives
aims and objectives
To raise awareness on the cause and fallout of Sickle Cell Disorders and negative lifestyle-induced conditions with a view to checkmating their prevalence.
To share information on new developments and discoveries in the treatment of the condition.
To share, educate and enlighten the general populace on health and responsible lifestyle practices to enable the average person to have a fair share of longevity.
To keep sufferers of Sickle Cell Disorders and Lifestyle challenges abreast of the latest life-enhancing medical and scientific discoveries and breakthroughs so that they can avail themselves of such developments for their betterment.
To offer a range of time-tested and proven products and services that can improve the general wellbeing of everyone.
To freely distribute medically approved medications and drugs to young sufferers of Sickle Cell from time to time.
To liaise and collaborate with government health agencies and other international agencies in achieving the above listed goals.
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